It's not like it sounds...really. At the 2 am - 3 am witching hour last night where Lisa can't decide if she wants to sleep, cry or play, we discovered that the medicine syringes they use to give her oral meds work great for shooting water.
As she woke this morning, she smiled and said "Let's shoot Daddy".
Things are going well given the circumstances. She had the dye injected yesterday for the MIBG scan and will have a scan done today and tomorrow to determine what areas "light up". This will give us more details about where the cancer is. Friday she is scheduled for a bone scan...again will give us more details. The unfortunate thing is because she is so young, she will have to be given anesthesia so she will be still....that's okay...I'm ready for the techs and questions this time...no falling on her face today!
This evening at 5 will be the discussion with the doctors as to the best protocol of treatment. There is the standard one that they've talked to us about and one that is basically a trial course (at least that's what I think they are saying). We have a few family members and friends who will be joining us at 5 to help translate what exactly is being said and ask questions.
Thank you to all of you who are reading, posting, praying, bringing food, offering services. Your love and support is uplifting and gives me a sense of security. I know there are many people rooting for Lisa and we are keeping the angels, saints and God busy! I keep thinking of that movie Bruce Almighty with Jim Carrey where he gets to be God and all the emails and voices that plague him as he tries to answer the prayer request...I like to think they are all going crazy up there as all the prayer request come in for Lisa.
Ok...well...off to start the day...Lisa is up and giggling and ready to play.
As she woke this morning, she smiled and said "Let's shoot Daddy".
Things are going well given the circumstances. She had the dye injected yesterday for the MIBG scan and will have a scan done today and tomorrow to determine what areas "light up". This will give us more details about where the cancer is. Friday she is scheduled for a bone scan...again will give us more details. The unfortunate thing is because she is so young, she will have to be given anesthesia so she will be still....that's okay...I'm ready for the techs and questions this time...no falling on her face today!
This evening at 5 will be the discussion with the doctors as to the best protocol of treatment. There is the standard one that they've talked to us about and one that is basically a trial course (at least that's what I think they are saying). We have a few family members and friends who will be joining us at 5 to help translate what exactly is being said and ask questions.
Thank you to all of you who are reading, posting, praying, bringing food, offering services. Your love and support is uplifting and gives me a sense of security. I know there are many people rooting for Lisa and we are keeping the angels, saints and God busy! I keep thinking of that movie Bruce Almighty with Jim Carrey where he gets to be God and all the emails and voices that plague him as he tries to answer the prayer request...I like to think they are all going crazy up there as all the prayer request come in for Lisa.
Ok...well...off to start the day...Lisa is up and giggling and ready to play.
2 comments:
Linda and Mike, it's 5pm and I guess you are with the doctors now to discuss treatment options. Please know that we are all thinking of you. I have asked my church family at St. Barnabas to remember you in prayer as well. Lisa is very lucky to have you watching out for her, and many, many people are holding her, and you, in their thoughts and prayers.
David
McMaster Clan, Please know that JuliAnna and I are thinking of you and that Princess Lisa is in our hearts and prayers. Every spare moment I have, I ask God to do everything He can for her. Linda, hang in there and if you just need a "beers and tears" moment give me a call! love, Diane
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