The treatment for Neroblastoma is very aggressive and while it will most likely shrink the tumors, the drugs are very toxic and can cause other problems.
Neuroblastoma is a tough cancer to beat....only 20% become cancer free for life. Looks like most children might beat it for a while (clean for 2-3 years after initial treatment), but then it is back and many times they lose the battle the second time around.
Lisa is on a leave from the hospital for the weekend. So long as we keep her dosed on Tylenol, she is her normal happy self. It's hard to believe that all this stuff is happening in her little body. It's very upsetting to know that to help our daughter we basically have to poison her.
We will return to the hospital Sunday night so she can get her IV hooked up again. Monday will be a day of more tests to make sure kidneys are working optimally (probably will require some type of shunt because her one of the masses is compressing her kidney and it is not draining completely). She also will be getting a port put in for her to receive medicines, have blood drawn, etc.
We expect to start the chemo this week, possibly Tuesday. There will be at least 4 more chemo treatments scheduled every 21 days. Each chemo treatment will require 3-5 days of hospitalization. After the cycles of chemo is completed she will have a major chemo treatment with a bone marrow transplant (using her cells that have been collected throughout the process) which will require hospitalization for 3-6 weeks. After that there will be radiation treatment.
This looks to be lonnnnnnnnngggg, tiring, scary, sad, painful road. I pray for faith, strength, dignity and courage to help us through this. I pray that we can keep our eyes on today and our thoughts from tomorrow, because there are just too many unknowns.