Thursday, September 20, 2012

Devestating news...Bridget the Brave battle nearing the end

I can barely type these words.  As we come off our high of hosting our fundraiser, the very reason for doing it smacks us in the face.  While I have more good news to share about some going on's with the Gold ribbon, I will save it for another post and ask that you read the update on Bridget that I copied from her CarePage.  Please pray....tears falling....

Sad News

Posted 56 minutes ago
My heart is heavy and the words do not come easily. There is no fancy way to say it, just the truth. Our daughter is dying. Our sweet girl whose 12 years have brought us incredible joy will soon enter a hospice program. Our little flower is fading right in front of our eyes daily.
The MRI came back with tumor progression yet again. This is the likely cause of her fatigue that had her asleep over 23 hours yesterday. Her counts are low and the current round of hardline chemo hasn't done anything to hold back the tumor. There is another chemo we will try if her counts rebound, but we understand the likelihood of this working when the tumor hasn't responded to the big guns is slim.
We know God has a perfect plan for Bridget. We know He has not forgotten or abandoned us. We know He could heal her this very minute. We also know that healing doesn't seem to be His plan right now. We are so grateful for the time He has given us with this beautiful child, time we didn't think we had in 2009, 2010, 2011, and 2012. So we pray, we beg, we wait, but most of all we hope. We place our trust and hope in the Lord who has carried us with love through these difficult days.
We will be in the hospital at least through the weekend. They are having trouble getting Bridget's sodium levels balanced. She had another seizure today. This could be from either the sodium or disease progression. The plan is to get her nutritional needs met with either the TPN (iv nutrition) or an ng tube. she had an allergic reaction to platelets this afternoon.As I write this her blood pressure is elevated without an obvious cause. Lots of things to sort out before we come home.
Please pray for us in the days ahead. Pray for wisdom in the medical decisions we make on treatment, nutrition, medication, and hospice and the medical teams that support us. Pray for Bridget that the Lord will bless her with peace and understanding, free from worry or fear. Pray for our family, especially Bridget's siblings. We have been on this road for 3 1/2 years, yet it is so hard to truly imagine our days without her gentle spirit with us.
One of the readings in this morning's divine office seemed so appropriate as if it was written just for us...
We are not discouraged,rather,although our outer self is wasting away, our inner self is being renewed day by day. For this momentary light affliction is producing for us an eternal weight of glory beyond all comparison, as we look not to what is seen, but to what is unseen, for what is seen is transitory, but what is unseen is eternal. - 2 Corinthians 4: 16-18
We thank all of you for all of the support and love you have extended to our Bridget and our entire family. even in the midst of this suffering, we are blessed.
Every Day with Joy!

1 comment:

Thandi said...

The beginning of a terrible and lonely journey. Preparing to say good bye to her, while saying hello to a pain I'll never comprehend:-(