Wednesday, October 15, 2008

Remember to Pray at 11:00am EST

Lisa is having her test done tomorrow.....all those reading offer up a prayer at 11:00am EST...perhaps we can shake the heavens with our requests.

Also....not able to get into details right now regarding Maranda (and please do not ask her about this because we have not told her yet) but apparently her scoliosis is caused by a rare condition (of course) called Syringomelia. Syringomyelia (sear-IN-go-my-EEL-ya) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying a portion of the spinal cord from its center and expanding outward.

At this point in time we don't know exactly what this means except for what we can get from the Internet. We will be setting up a meeting with a neurosurgeon to discuss options....it could be observation, physical therapy or surgery. Info seems to indicate surgery is most successful option, but this is a chronic condition that can possibly re-occur over time. As a child it manifests as scoliosis, as an adult it can cause headaches, pain and sometimes result in some disabilities.

jeeezzzz...Mike and I are off to drink!

5 comments:

Anonymous said...

Sending warm thoughts and positive energy to all of you.

Let me know when you'd like a foot massage again ;).

Love,
Pam Dear

Zookeeper said...

You are always in my thoughts... I am praying for you all each day.. again if you need anything let me know...

Anonymous said...

11 am it is!

Praying like crazy!

Lisa G.

Diane E said...

My positive energy and prayers are with you guys! Diane

BookMama said...

Hope all went well today - I did my part with praying at 11. (And 11:10 ... and 11:15 ... ) Am watching for an update when you have time.


- Andrea S-R