Wednesday, March 13, 2013

We apologize for the lack of updates lately. Lisa has been holding fairly steady but her blood tests have been coming in lower and lower.

Yesterday was the first transfusion she has needed in months. This might suggest that her bone marrow is having a harder and harder time recovering from the successive rounds of chemo.  She's been getting chemo every third week now since October I think. I don't even want to look back at the log to find out.

Life has been fairly stable lately so I don't want to even think about it.  Unfortunately, I suspect we're approaching decision time again.  Simply continuing chemo indefinitely isn't an option. Options are getting more limited because the disease is also in her brain. I think we may be changing the chemo either next round or the round after that, and that could bring on any number of nasty side effects.

It seems the nearly all of the neuroblastoma trials do not address disease in the brain.  Chemo agents simply have a tough time [or simply cannot] penetrating past the brain dura layer. So that effectively renders her ineligible for the experimental trials and studies that we would like to get her into.

Keep her in your prayers and we'll keep you in ours. 


Thandi said...

Praying and praying and praying.

Anonymous said...

I continue to pray for all of you. I'm looking forward to warmer weather and seeing Lisa playing outside. God bless. Debbie

Anonymous said...

Dear friends, I am praying with all my heart and soul.
"Come Gracious Spirit, Heavenly Dove,
With light and comfort from above.
Be Thou our Guardian, Thou our Guide,
Stay close by every child's side."