$12,000 donated to Motts

Lisa gave the money raised from the BLASTnb event to her doctor today during our clinic visit.  The event raised $12,000 for Motts and $4,800 for Rainbow Connection. 

$12,000 and look what word is to the left of Lisa's head!!!!

Next steps are still unknown.  Lisa did not qualify for a trial at Sloan Kettering and the slots for the St. Jude protocol were filled.  I've asked the doctor to waitlist her for St. Jude.  There is a new protocol that may open at Motts soon and the doctor thinks would be good for Lisa, unfortunately it could conflict with our big family vacation to Topsail so we are not sure what will happen.  Once  the study opens, the doctor only has 7 days to get Lisa enrolled and scans done, the protocol would have to start by day 12, so this could be a bit tricky to work out.  And, sadly, with all these studies, there is no known cure, no real statistics as to what works best and no guidance on what to hope for.

So, as always, we continue to pray and hope and try to remember to count every day as a blessing and live life to it's fullest.