Just a quick update. Docs were able to amend the study so that Lisa is able to stay on it. That means she stays with the same chemo drugs. She's on day 3 of this cycle and side effects have been minimal. She's looking good and feeling good. Thank you Lord! The hope is that MIBG study opens in April and that Lisa can get a slot. Again, while this treatment won't cure her, it does a good job of slowing the disease down.
One of our neuroblastoma buddies school has been raising money for Motts in his name and he may be featured on Detroit Channel 4 new tommorrow...so keep your eyes open.
Also, I've been working with some friends on putting together a fundraiser to raise money for Neuroblastoma research....we've got a place, date, band and many other ideas we're looking into....we're still ironing out details, so stay tuned and be ready to join us June 12 in Canton to BLAST neuroblastoma!
Subscribe to:
Post Comments (Atom)
2 comments:
I'm so glad to hear that Lisa is able to stay on the study and continues to have minimal side effects. Adding my hopes that the MIBG study opens in April and that Lisa gets a slot.
I look forward to the June 12th fundraiser. You ROCK!
Love,
Pam
I have the fundraiser marked on my calendar and will be there. Let me know if I can do anything to help.
So glad they were able to amend the study--I was hoping that that would happen! It's also great to hear that Lisa is feeling good and to see pictures of her beaming little face.
Sending you all my best, every day.
Lynn Zott
Post a Comment