Monday, Lisa and I went up to the school just as her kindergarten class was getting ready to go home. She didn't want to be seen by anyone so we slinked thru the school trying to be invisible. I let her teacher know she was waiting in the the side room. Her teacher came and gave her a hug. The teacher also let the kids know Lisa was waiting and made the wise choice of having them line up for dismissal and quietly "parade" past Lisa on their way out. It was a good way to give everyone a chance to see each other. Lisa stood with me behind a desk and all the kids waved on their way out.
Tuesday, both Lisa and I went to kindergarten. It was fun. We got to go to music and do the math activity before Lisa tired out. She lasted about two hours. I have to say, I was having a bit of trouble sitting in the criss-cross applesauce position for too long! Lisa and I left and she rested for the rest of the day (ok, I took a nap too...kindergarten is hard work!!)
Today was a bit more of a struggle to get her up. She fought me the whole way to school, but once we were there she fell into the routine. Her teacher talked with her and they agreed I could go home and come back and pick her up when school was over. I've been holding my breath ever since I got home waiting for the phone to ring. I'm not sure if this is harder on me emotionally, or on Lisa physically. It's a lot to ask of her little body and bless her heart, she tries really, really hard and you can tell by looking at her that she is still tired and aching.
I'm so glad I chose to hold her back in kindergarten. I can't imagine trying to get her accustomed to a whole new teacher, classroom and routine on her limited schedule! Her teacher, Mrs R. is awesome!!!!! All of you who have been at Hulsing know who I'm talking about. She is such a caring, accommodating, understanding, gracious, loving teacher. I can't imagine getting Lisa to go to school without her. There are a lot of other people at Hulsing looking out for Lisa and to all of you I thank you from the bottom of my heart. She's a little girl with a big battle and each and every kind gesture you do helps make her fight a little easier.
So, we continue to carry on, because what else can we do. At this time next week, we will be down at St Jude again. Lisa will be going thru her scans and we will be getting ready for the second course of antibodies. I'm scared and very anxious. To see her still having so much pain really makes me question our decision to do this, but the doctors are very convinced it's the best thing for her. I hope they are right....putting her thru all this pain for nothing would be a tragedy. I pray that things go smoother this next time and that somehow we all find the strength within to carry on and fight and make the best of this tiresome situation.
Wednesday, September 29, 2010
Sunday, September 26, 2010
a smile and a request for a hug...Life is Good!
Finally....I think we made progress. Lisa woke me with a smile today and a request for a hug. Yeah! It was a brief moment, but we'll take it.
Thursday also provided a ray of hope in this long week of aches, pain and sleepiness. Lisa was alert and talking and eating in between long rest periods. Her check up with her doctor went well and we thought we were on the road to happy days. Unfortunately, Thursday night Mike noticed her cheeks were flush. We figured it was from sleeping under covers the whole day. Friday morning, when she finally woke up and stumbled out of bed, she looked like the little girl in the book "Pinkalicious". Her face was all pink and she was covered with a rash on her arms and torso. She also had a slight temperature. I thought it was "5ths disease". She seemed to be fine. She ate breakfast and was asking about a play date. That lasted a short time until she retreated to bed and her temperature spiked. A call to the doctor got us an invite to the ER so they could assess her. I called Mike and asked him to pleassssseeeee come home from work and take her to the ER. Sounds terrible, but I just couldn't do it. I could not go back to the hospital and sit around and talk to doctors and wait for diagnoses and decisions....I just couldn't...I'd had enough. I was happy just cleaning out the basement ...that's where I wanted to stay... in my own little world...in a place where I could actually do something...see progress made. It's crazy I know, what kind of person trades in cleaning a basement over caring for her child...a person whose had enough of hospitals, that's who! So, yes, Mike came through. He came home, went to the ER with Lisa for four hours and came back with the news that the rash was a reaction to pain meds they had started Lisa on this week. They dosed her with Benadryl and a pain medicine we used in the past (the one I had originally asked for!) and basically knocked her out for the evening. Friday was a tough night...she kept spiking fevers and she was totally out of it. Mike kept a close eye on her and when she woke up Saturday morning, she looked tons better, she wasn't pink and she looked much more comfortable. She slept for most of the day and by evening she had perked up enough to ask for noodles and a Popsicle. Once she was done eating, she put herself to bed and slept in her OWN bed for a few hours. At about midnight, she decided her bed wasn't cozy and moved into mine where she slept for the remainder of the night!
This morning she woke up with a smile and a request for a hug...we'll take it! Life is Good...in this moment, right now, there are smiles...and that is GREAT!
Thursday also provided a ray of hope in this long week of aches, pain and sleepiness. Lisa was alert and talking and eating in between long rest periods. Her check up with her doctor went well and we thought we were on the road to happy days. Unfortunately, Thursday night Mike noticed her cheeks were flush. We figured it was from sleeping under covers the whole day. Friday morning, when she finally woke up and stumbled out of bed, she looked like the little girl in the book "Pinkalicious". Her face was all pink and she was covered with a rash on her arms and torso. She also had a slight temperature. I thought it was "5ths disease". She seemed to be fine. She ate breakfast and was asking about a play date. That lasted a short time until she retreated to bed and her temperature spiked. A call to the doctor got us an invite to the ER so they could assess her. I called Mike and asked him to pleassssseeeee come home from work and take her to the ER. Sounds terrible, but I just couldn't do it. I could not go back to the hospital and sit around and talk to doctors and wait for diagnoses and decisions....I just couldn't...I'd had enough. I was happy just cleaning out the basement ...that's where I wanted to stay... in my own little world...in a place where I could actually do something...see progress made. It's crazy I know, what kind of person trades in cleaning a basement over caring for her child...a person whose had enough of hospitals, that's who! So, yes, Mike came through. He came home, went to the ER with Lisa for four hours and came back with the news that the rash was a reaction to pain meds they had started Lisa on this week. They dosed her with Benadryl and a pain medicine we used in the past (the one I had originally asked for!) and basically knocked her out for the evening. Friday was a tough night...she kept spiking fevers and she was totally out of it. Mike kept a close eye on her and when she woke up Saturday morning, she looked tons better, she wasn't pink and she looked much more comfortable. She slept for most of the day and by evening she had perked up enough to ask for noodles and a Popsicle. Once she was done eating, she put herself to bed and slept in her OWN bed for a few hours. At about midnight, she decided her bed wasn't cozy and moved into mine where she slept for the remainder of the night!
This morning she woke up with a smile and a request for a hug...we'll take it! Life is Good...in this moment, right now, there are smiles...and that is GREAT!
Wednesday, September 22, 2010
Still Hurting
Sorry for missed posts...it's been a bit crazy here at the household. Have to give the older kids a round of applause for hanging in there and moving forward. Lisa is still not feeling well and her cries and shouts of pain and anger make it pretty stressful, but the older kids have managed to brush it aside and not let it get to them.
Up until yesterday Lisa was still spiking fevers around the clock. She hasn't slept thru the night in over a week and she's often complaining of pain in her legs, neck and stomach. She has barely eaten since we got home Saturday and the food she has in her has been forced upon her to which she protested LOUDLY.
Yesterday, I did sneak her up to the school so she could see her teachers. I wanted to avoid running into her classmates because Lisa was not feeling very social and I feared any attention from her peers would put her over the edge. Her teacher was not in the class when we got there, so we left a "mysterious calling card", we switched out Momma Monkey for baby Monkey McMaster. We then went to see Lisa's speech teacher. While both Lisa and her teacher were excited at being reunited, Lisa's energy waned quickly. She lasted about 15 minutes before she put her head down on the desk and said she wanted to go home. She was so tired she didn't even want to walk. Her teacher was nice enough to go out to the car and get her baby stroller so we could wheel Lisa out.
After we got home, Lisa rested and took a nap and then we headed out to see her doctor at Motts. Mike and I are very concerned about her reaction to the antibody, but her doctor is very confident that these side effects are normal for an antibody study and did not seem surprised they were lasting this long. He feels that we should continue with the study.
I'm not sure how I feel about any of this. I've having trouble figuring out how I can go back to St. Jude in just two more weeks and watch Lisa endure more pain. I'm not sure how much time we are buying her with this treatment and I struggle with what the payoff is. If we are only buying her a few more months with the antibody, is it worth it to put her thru the pain? If we are giving up 3 to 4 months to pain just to gain an extra 3 months in the end...isn't it a wash when it comes to quality of life? If only we had a crystal ball, if only we knew this was working, if we knew how much time we were buying....it's just so hard not knowing and at this point, there isn't an answer. I keep praying that Lisa will wake up and just bounce back to her normal self so I won't feel the tremendous guilt and fear of putting her thru this again.
Arghhhhh!
Up until yesterday Lisa was still spiking fevers around the clock. She hasn't slept thru the night in over a week and she's often complaining of pain in her legs, neck and stomach. She has barely eaten since we got home Saturday and the food she has in her has been forced upon her to which she protested LOUDLY.
Yesterday, I did sneak her up to the school so she could see her teachers. I wanted to avoid running into her classmates because Lisa was not feeling very social and I feared any attention from her peers would put her over the edge. Her teacher was not in the class when we got there, so we left a "mysterious calling card", we switched out Momma Monkey for baby Monkey McMaster. We then went to see Lisa's speech teacher. While both Lisa and her teacher were excited at being reunited, Lisa's energy waned quickly. She lasted about 15 minutes before she put her head down on the desk and said she wanted to go home. She was so tired she didn't even want to walk. Her teacher was nice enough to go out to the car and get her baby stroller so we could wheel Lisa out.
After we got home, Lisa rested and took a nap and then we headed out to see her doctor at Motts. Mike and I are very concerned about her reaction to the antibody, but her doctor is very confident that these side effects are normal for an antibody study and did not seem surprised they were lasting this long. He feels that we should continue with the study.
I'm not sure how I feel about any of this. I've having trouble figuring out how I can go back to St. Jude in just two more weeks and watch Lisa endure more pain. I'm not sure how much time we are buying her with this treatment and I struggle with what the payoff is. If we are only buying her a few more months with the antibody, is it worth it to put her thru the pain? If we are giving up 3 to 4 months to pain just to gain an extra 3 months in the end...isn't it a wash when it comes to quality of life? If only we had a crystal ball, if only we knew this was working, if we knew how much time we were buying....it's just so hard not knowing and at this point, there isn't an answer. I keep praying that Lisa will wake up and just bounce back to her normal self so I won't feel the tremendous guilt and fear of putting her thru this again.
Arghhhhh!
Saturday, September 18, 2010
We are home!!!
Sorry for missed posts...I've totally lost track of time and days.
After my early morning post on Wed, I managed to go to bed and get 4 hours of sleep. Lisa was still pretty out of it, spiking fevers, aching and not very friendly. It came as a big surprise when around 2:00 the nurse informed me that she was being discharged? Huh? Back home a temp over 101 was a guaranteed stay. At St Jude, based on the procedure she had done and there 99% certainty that the fever was due to the antibody they were comfortable discharging her.
We were released with antibiotics that I had to run thru her line once a day and some Tylenol for fevers. No pain relievers were prescribed because of her adverse reaction to the meds in the hospital. Lisa perked up a little bit when we left the hospital and wanted to spend time outside. She wasn't up to walking on her own but was happy to be pushed around in the wheelchair.
Thursday we ended up having the whole day off because they moved all of our appts to Friday. We slept in, spent some time strolling around and then went to the McDonald house so Lisa could play. She ended up taking a 3 hour nap. She still wasn't herself. Not a lot of energy, no appetite and having aches and pains.
Friday morning came with the hope of going home. We spent 4 hours in the morning getting labs drawn and seeing the docs. Lisa was not very cooperative at all. For a place that says "yes ma'am, no ma'am" all the time, Lisa's behavior, shouts of no, and outright refusal to listen made her really stand out. While I'm certain that they are used to seeing all kinds of behavior, for me, it was very disturbing and frustrating. She rarely acts like that and it was non-stop. At 1:30 we finally got the ok to go home. I had already talked with travel and they had reserved us a flight. I had 3 hours to get the final paperwork tied up, feed us and pack the rest of our belongings. Lisa was groggy, in pain and no desire to eat or talk. She sat in the wheelchair for the whole time dozing. We left for the airport at 4 and the only time she walked all day was to get into the shuttle. We needed a wheelchair to use in the airports. She was hurting too much to walk much further than the ramp. She slept the whole flight.
She perked up when we arrived and she saw Mike waiting with the car. We got home around 10:30pm and the kids had decorated and made a cake. Lisa seemed very happy to be home and she actually ate a sandwich and two bites of cake and then it was back to bed.
She has spent most of the day sleeping today. She is still toying with a fever and right now is cuddling up with daddy and watching the Michigan game. I am pretty much emotionally drained. It is always hard for me to take her into the hospital walking, skipping and jumping and bring her home a crumbled shell of herself. I keep hoping she will bounce back in the next day or so and make this all worth it. If not, Mike and I need to really consider whether or not continuing with this treatment is worth it and really improving her quality of life. We are do to go back in 28 more days, so we have some time to decide.
Glad to be home, but going to take some time to get back into the groove.
After my early morning post on Wed, I managed to go to bed and get 4 hours of sleep. Lisa was still pretty out of it, spiking fevers, aching and not very friendly. It came as a big surprise when around 2:00 the nurse informed me that she was being discharged? Huh? Back home a temp over 101 was a guaranteed stay. At St Jude, based on the procedure she had done and there 99% certainty that the fever was due to the antibody they were comfortable discharging her.
We were released with antibiotics that I had to run thru her line once a day and some Tylenol for fevers. No pain relievers were prescribed because of her adverse reaction to the meds in the hospital. Lisa perked up a little bit when we left the hospital and wanted to spend time outside. She wasn't up to walking on her own but was happy to be pushed around in the wheelchair.
Thursday we ended up having the whole day off because they moved all of our appts to Friday. We slept in, spent some time strolling around and then went to the McDonald house so Lisa could play. She ended up taking a 3 hour nap. She still wasn't herself. Not a lot of energy, no appetite and having aches and pains.
Friday morning came with the hope of going home. We spent 4 hours in the morning getting labs drawn and seeing the docs. Lisa was not very cooperative at all. For a place that says "yes ma'am, no ma'am" all the time, Lisa's behavior, shouts of no, and outright refusal to listen made her really stand out. While I'm certain that they are used to seeing all kinds of behavior, for me, it was very disturbing and frustrating. She rarely acts like that and it was non-stop. At 1:30 we finally got the ok to go home. I had already talked with travel and they had reserved us a flight. I had 3 hours to get the final paperwork tied up, feed us and pack the rest of our belongings. Lisa was groggy, in pain and no desire to eat or talk. She sat in the wheelchair for the whole time dozing. We left for the airport at 4 and the only time she walked all day was to get into the shuttle. We needed a wheelchair to use in the airports. She was hurting too much to walk much further than the ramp. She slept the whole flight.
She perked up when we arrived and she saw Mike waiting with the car. We got home around 10:30pm and the kids had decorated and made a cake. Lisa seemed very happy to be home and she actually ate a sandwich and two bites of cake and then it was back to bed.
She has spent most of the day sleeping today. She is still toying with a fever and right now is cuddling up with daddy and watching the Michigan game. I am pretty much emotionally drained. It is always hard for me to take her into the hospital walking, skipping and jumping and bring her home a crumbled shell of herself. I keep hoping she will bounce back in the next day or so and make this all worth it. If not, Mike and I need to really consider whether or not continuing with this treatment is worth it and really improving her quality of life. We are do to go back in 28 more days, so we have some time to decide.
Glad to be home, but going to take some time to get back into the groove.
Wednesday, September 15, 2010
Morphine Monsters
Sorry for missed post yesterday. It was pretty stressful here. It was the last day for the antibody; we followed the pain med regimen that had worked for the prior two days annnnnnnndddddd while Lisa didn't scream with pain, she was crazy out of her mind! She had gone "hog wild" and "was one fry short of a happy meal".
We had given her morphine 2 hours before infusion, gave her ativan15 minutes before infusion and the morphine again with the infusion, just as we had done the days before. The first hour went fairly well, but then instead of going to sleep like she normally does on this drug cocktail, she started to get agitated. Rather than give her more morphine, we opted to give her another does of ativan with the hope that it would calm her and knock her out. Well that didn't happen....while she would doze for minutes at a time, she never fell asleep. She spent most of the morning agitated, whining and talking back. As the afternoon rolled around, she was completely spaced out and wasn't making any sense. I would say she was talking in her sleep, except...she wasn't sleeping. ARGH! As it got later in the day, she started seeing things. It was very creepy. She kept pointing at things and asking me who or what they were...I couldn't answer her because there was nothing where she was pointing. As time went on, it got even worse. Every time she would drift off to sleep, she would bolt awake and be terrified by something. One time it was a monster, one time she kept hitting and slapping at her arm because there were spiders on it, another time she kept trying to hand me some non-existent pants. We thought things would get better as time wore on and the drugs wore off...no such luck. Now she was waking up and screaming there were dogs behind my head or she would look asleep but the would keep reaching out for things that weren't there. She kept pointing and saying she saw Daddy, she was seeing other friends as well and would tell me what they were wearing. As it got later in the evening, things started to get more intense. She would wake up and try to stand up on the bed. The one time as tried to stand she was screaming "pick me up, pick me up, get my legs off the bed" apparently she thought there was snow and she didn't want it touching her. I was afraid to leave her alone because I thought she'd ended up trying to fly or something. Finally at midnight, I climbed into bed with her. The ramblings continued but at least I could hold onto her and make sure she didn't hurt herself. She spent a lot of the night pointing at things and whimpering. As 4:00 rolled around and the nurse came to do vitals, I got a bad case -of the "what-ifs"...what if the antibody or drugs did something to her brain and she would be talking crazy forever, what if we made the wrong decision in taking this treatment on, what if we traded in her quality of life that had been pretty good for a life of hallucinations....too many what ifs.... I got out of bed and helped Lisa go to the bathroom. She wasn't talking crazy anymore, but she was talking mean and bitchy... a sure sign her temp had spiked again. We got her some Tylenol and I was sure she would go back to sleep. Unfortunately once the Tylenol took effect, she started complaining her neck and legs hurt. I tried to convince her to go back to sleep, but she took it upon herself to buzz her nurse and ask for something for her pain. Morphine, obviously, was off the list so she got codeine. Jury is still out on that, she took it about a 1/2 hour ago but is still complaining about pain AND she's already tried to stand on the bed and was pointing at something I couldn't see. It's 5:30 now and I'm praying real hard that something kicks in and knocks her out for a while. In the past 3 days, I've had no more than 3 hours consecutive sleep and total sleep has probably been around 15 hours. If we don't get her settled down so I can get some sleep, I'm going to need the morphine or ativan. The poor people walking around St Jude, bless their hearts, better steer clear...I'm feeling mighty bitchy...wonder if I could just saying I was spiking a fever!
We had given her morphine 2 hours before infusion, gave her ativan15 minutes before infusion and the morphine again with the infusion, just as we had done the days before. The first hour went fairly well, but then instead of going to sleep like she normally does on this drug cocktail, she started to get agitated. Rather than give her more morphine, we opted to give her another does of ativan with the hope that it would calm her and knock her out. Well that didn't happen....while she would doze for minutes at a time, she never fell asleep. She spent most of the morning agitated, whining and talking back. As the afternoon rolled around, she was completely spaced out and wasn't making any sense. I would say she was talking in her sleep, except...she wasn't sleeping. ARGH! As it got later in the day, she started seeing things. It was very creepy. She kept pointing at things and asking me who or what they were...I couldn't answer her because there was nothing where she was pointing. As time went on, it got even worse. Every time she would drift off to sleep, she would bolt awake and be terrified by something. One time it was a monster, one time she kept hitting and slapping at her arm because there were spiders on it, another time she kept trying to hand me some non-existent pants. We thought things would get better as time wore on and the drugs wore off...no such luck. Now she was waking up and screaming there were dogs behind my head or she would look asleep but the would keep reaching out for things that weren't there. She kept pointing and saying she saw Daddy, she was seeing other friends as well and would tell me what they were wearing. As it got later in the evening, things started to get more intense. She would wake up and try to stand up on the bed. The one time as tried to stand she was screaming "pick me up, pick me up, get my legs off the bed" apparently she thought there was snow and she didn't want it touching her. I was afraid to leave her alone because I thought she'd ended up trying to fly or something. Finally at midnight, I climbed into bed with her. The ramblings continued but at least I could hold onto her and make sure she didn't hurt herself. She spent a lot of the night pointing at things and whimpering. As 4:00 rolled around and the nurse came to do vitals, I got a bad case -of the "what-ifs"...what if the antibody or drugs did something to her brain and she would be talking crazy forever, what if we made the wrong decision in taking this treatment on, what if we traded in her quality of life that had been pretty good for a life of hallucinations....too many what ifs.... I got out of bed and helped Lisa go to the bathroom. She wasn't talking crazy anymore, but she was talking mean and bitchy... a sure sign her temp had spiked again. We got her some Tylenol and I was sure she would go back to sleep. Unfortunately once the Tylenol took effect, she started complaining her neck and legs hurt. I tried to convince her to go back to sleep, but she took it upon herself to buzz her nurse and ask for something for her pain. Morphine, obviously, was off the list so she got codeine. Jury is still out on that, she took it about a 1/2 hour ago but is still complaining about pain AND she's already tried to stand on the bed and was pointing at something I couldn't see. It's 5:30 now and I'm praying real hard that something kicks in and knocks her out for a while. In the past 3 days, I've had no more than 3 hours consecutive sleep and total sleep has probably been around 15 hours. If we don't get her settled down so I can get some sleep, I'm going to need the morphine or ativan. The poor people walking around St Jude, bless their hearts, better steer clear...I'm feeling mighty bitchy...wonder if I could just saying I was spiking a fever!
Monday, September 13, 2010
Day 3 of 4
We are on day 3 of 4 of getting the antibody. Yesterday went much better than day 1, we got her pain meds straightened out and Lisa was able to "sleep" thru most of it. Her sleep is basically morphine induced and according to the monitors and her heart rate, her body is probably feeling pain but her brain isn't registering it....thank goodness for pain meds!!
She continues to spike high temps which is a side effect and Tylenol is helping with that. Between the fevers and the antibody she is mighty sore and achy. But she's a fighter and even in her pain she's figured out that if she bulges her eyes out at me, it'll freak me out...so that's what she does...just like the rest of the comics in the household, she'll do anything to get a reaction!
She continues to spike high temps which is a side effect and Tylenol is helping with that. Between the fevers and the antibody she is mighty sore and achy. But she's a fighter and even in her pain she's figured out that if she bulges her eyes out at me, it'll freak me out...so that's what she does...just like the rest of the comics in the household, she'll do anything to get a reaction!
Saturday, September 11, 2010
Monkey Business
This post is a little out of order because of our rough start this morning. Lisa is doing better but she is doped up pretty good. She is still having pain which means tomorrow could be another rough time when they infuse her with the antibody.
Anyway, yesterday was a day of misadventure turned adventure. We got done with all of our appointments by 1:00 yesterday and wanted to go to the zoo, but both of us were too tired. We ate lunch and took a nice long nap. We got up around 4 and decided to give the zoo a try...if we could make it there by 5 we would have an hour to walk around. We were told we could take the St. Jude shuttle to the Target house where long-term St. Jude patients reside, from there it was supposed to be one "block" to the zoo. Well, that "one" block was one big, big, big, block which was actually one main road to the next main road and over a 1/2 mile walk. It was 90 degrees and humid. After walking for 15 minutes, Lisa and I were both miserable. We were hot, sweaty and upset. We decided to turn around and walk back to the shuttle. We got back to the Target house right as a shuttle was heading back so we were able to jump back on and were thankful for the air conditioning, but bummed out about missing the zoo. The shuttle driver suggested we go check out the Ronald McDonald house which is another place St. Jude's patients stay. It was a great consolation plan. They had two play structures, toys, bikes, computers and best of all a pantry full of food for their patients. Lisa was ecstatic....nothing like some good ole Kraft Mac and Cheese and Hunts pudding cup to put a smile on your face. Have we mentioned that the cafeteria food we've been eating for dinner is pretty awful? Besides ice cream, that Kraft Mac and Cheese was the first thing Lisa finished since we got here! And....the front desk had HOMEMADE chocolate chip cookies, I too was in heaven!!
Anyway, yesterday was a day of misadventure turned adventure. We got done with all of our appointments by 1:00 yesterday and wanted to go to the zoo, but both of us were too tired. We ate lunch and took a nice long nap. We got up around 4 and decided to give the zoo a try...if we could make it there by 5 we would have an hour to walk around. We were told we could take the St. Jude shuttle to the Target house where long-term St. Jude patients reside, from there it was supposed to be one "block" to the zoo. Well, that "one" block was one big, big, big, block which was actually one main road to the next main road and over a 1/2 mile walk. It was 90 degrees and humid. After walking for 15 minutes, Lisa and I were both miserable. We were hot, sweaty and upset. We decided to turn around and walk back to the shuttle. We got back to the Target house right as a shuttle was heading back so we were able to jump back on and were thankful for the air conditioning, but bummed out about missing the zoo. The shuttle driver suggested we go check out the Ronald McDonald house which is another place St. Jude's patients stay. It was a great consolation plan. They had two play structures, toys, bikes, computers and best of all a pantry full of food for their patients. Lisa was ecstatic....nothing like some good ole Kraft Mac and Cheese and Hunts pudding cup to put a smile on your face. Have we mentioned that the cafeteria food we've been eating for dinner is pretty awful? Besides ice cream, that Kraft Mac and Cheese was the first thing Lisa finished since we got here! And....the front desk had HOMEMADE chocolate chip cookies, I too was in heaven!!
Below is a video Lisa and I worked on this the other day using new tools on our new laptop. It's pretty simplistic, but hey we're still learning....it's just a little film about Monkey McMaster. Enjoy:)
(Use the volume button on the video if you can't hear Lisa at the end)
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